This past Friday my husband Ian and I found out detrimental information about the health of our baby boy. Specialists have found a hole in his diaphragm that has allowed his stomach/intestines to grow up through said hole and into his lung cavity. This condition is diagnosed as a Diaphragmatic Hernia, for more information here is a link. We are transferring our care as of now to Boston, Ma, as Maine does not have the resources to care for our son.
We will be having an appointment with more specialist and a neonatal surgeon, hopefully this upcoming week. We will then have more information about severity and his current state of lung development. Until then, this is all the information we have. Our lives are and will be continuing to change in the coming weeks/months as we prepare for our baby boy's delivery.
We are asking that you would not forget our baby in this season and that he and our family would be in your prayers.
We will not stop believing in the possibility of full healing- nor will our peace and hope be shaken. We fully trust and are relying of God- who has promised to carry us through the deep waters of life.
Thank you for standing with us
Rae, is there a way to follow the blog so I can get email updates? <3 Love you!
ReplyDeleteJust to encourage you. They found a ventricular septal defect (hole in the heart) in our baby. We made severaltrips back and foth to Johm's Hopkins, and they continued to prepare us for the worst outcome up until the last week before she was born (the last sonogram). After she was born they did an echo cardiogram on her and found no signs of the defect. They say sometimes they close on their own, but I know that if they found it the week before she was born the only possibility is she was healed at se point in that last week. Have faith and keep praying. Doctors only know science. We know the Creator.
ReplyDeleteJust to encourage you. They found a ventricular septal defect (hole in the heart) in our baby. We made severaltrips back and foth to Johm's Hopkins, and they continued to prepare us for the worst outcome up until the last week before she was born (the last sonogram). After she was born they did an echo cardiogram on her and found no signs of the defect. They say sometimes they close on their own, but I know that if they found it the week before she was born the only possibility is she was healed at se point in that last week. Have faith and keep praying. Doctors only know science. We know the Creator.
ReplyDelete